Monday, May 31, 2010

Long Time Gone

It has been a long time since my last posting, I guess my life is just busy. There has been a lot going on in my life and I am just trying to wrap my small brain around it all before Sy gets here. Oh that is right, FYI I am having a BOY! I am very excited and can't wait to meet my little son and see what he looks like. He is due on July 22nd, but my doctor has to leave town on the 15th of July so he will be here no later than on the 14th. Which Zoe isn't too excited about because her birthday is the 14th. So meanwhile after my mom gets here I will be doing everything in my power to go to the hospital before this date and have him.

As for Rya, she is doing well. We did have a few appointments for her this last couple weeks. Her neurologist said that she was impressed with her motor skills and state that she believes she is around a 7-8 month old in that area. However her cognitive still are still down around a 5-6 month old. Mostly because at that time she was not saying any constants. We were not sure if this difference was a good thing or a bad thing, and to be honest she was not either. She stated that in all her time doing her job she had never seen something like that before. So she wasn't sure if she could say it was a bad thing or a good thing. I personally decided to see it as a good thing as well as her physical therapist is seeing it that way.

Her rehab appointment also came and I was a bit more nervous about this one. Her SMO that she was first given for her foot really didn't/doesn't seem to be doing any good for her foot. She is way too strong and over powers it when she stands, since it is just plastic. So the doctor gave a script for two new braces. One that will go to all the way up her leg to her knee to give it more stability as well as a soft one for when she is asleep. She was also very disappointed in her tightness with her muscles on the left side. So we started her on a new medication called Baclofen to help her muscles relax and make it easier for us to do stretches with her. We also set up an appointment for her to have Botox injections in a few different places. This Botox should last for 3 months and help a lot to make her stretches work better. After three months we then evaluate the results and decide then if she needs another round. After she receives her Botox the doctor wants us to amp up her PT. Which means anywhere from 3-5 days a week of PT. This is a lot for me and I am feeling very overwhelmed. But we have to do what we have to do, I might start out with 3 times a week to just get used to the situation. As well as work Rya up to the 5 days. But Jon wants to jump into the 5 days right away. Just seems like a lot for me as well as Rya and we will have to come to a happy medium somehow.

Well that is all for now.....sorry my posts are always so long!

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